The Information Point for Centronuclear and Myotubular Myopathy
Home
Our History
What's New
Events
FAQ's
Share a Story
Talk
Equipment
Terminology
Resource Gallery
About the Condition
Factsheet on Centronuclear and Myotubular Myopathy, MDA, August 2006 (Word 186 kb)
A Range of Outcomes: Taking a Closer Look at Myotublar Myopathy
(from the September 2007 issue of Quest magazine)
A Case Study: Myotubular Myopathy - A Report by Candice Roman, 30 March 2000
(PDF 168 kb)
Myotubular Myopathy Case Study by Candice Roman (PowerPoint 166 kb)
Equipment
Research
Beggs Laboratory, December 2006 Newsletter (PDF 4 mb)
Beggs Laboratory December 2005 Newsletter (PDF 1 mb)
Of Mice and Men, A Report from the Genetic Interest Group (Word 370 kb)
Making Babies Reproductive Decision and Genetic Technologies,
A Report from the Human Genetics Commission
Grants
BDF Child and Family Grant Application (7.0 kb)
BDF Child and Family Grant (PDF 72 kb)
Information Point Webshop Forms
By.at Pink Bag Poster (PDF 160 kb)
RAC Poster (PDF 488 kb)
Myotubular Trust Forms
Gift Aid Form (PDF 35 kb)
'When? What? Why? How?'
(PDF 841 kb)
Other
Muscular Dystrophy Campaign Publications List (Word 104 kb)
Muscular Dystrophy Campaign Fund Finder (Word 52.0 kb)
Being a Father to a Child With Disabilities, A Report by the Social Care Institute for Excellence
Disclaimer
|
Contact Us
© The Information Point
