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Date: 1 December 2007 Location: The Oasis Wellness Center in Montville, New Jersey.
Date: 2 November 2007 Location: The Mall Galleries, Pall Mall View the auction catalogue (PDF 3.67 mb)
Date: October 2007 - December 2007 IPM - International Poster Management have adoped the Myotubular Trust as their charity of the year and are helping raise awareness of Myotubular Myopathy. A huge backlit billboard poster has been provided on Cromwell Road, London for 2 1/2 months. IPM are also helping with a poster campaign in nurseries across the UK and 100,000 sandwich bags in cafes and bars in London's City and West End, all free of charge.
Date and Time: 16 September 2007 Location: Kenilworth, New Jersey, USA
Date: 15 September 2007 Location: Church House, Westminster, London, SW1 For further information visit the Muscular Dystrophy Campaign website
Date and Time: 15 - 22nd September 2007 A major new drive for awareness and fundraising from the Muscular Dystrophy Campaign. The Big Push will be a concentrated period of activity, pushing for better services and pushing the case for research funding as well as being a major fundraising push. Date: 8th September 2007, 10 a.m. - 5 p.m. Location: V and A Museum, South Kensington, London For further information visit the Myotubular Trust website.
The first Myotubular Trust charity calendar, 'Favourite Places', was launched at the Myotubular Trust Family Conference day. To purchase a calendar, visit the Myotubular Trust website.
Shark Dive
Date: 31st August 2007
Mark Fairhurst will be diving with sharks to raise money for the Myotubular Trust.
His grandson Reece has Myotubular Myopathy. To sponsor Mark's dive, visit the Myotubular Trust website.
Date: 18 - 19 August 2007 Location: Morris County, New Jersey, USA
CNM / MTM Family Get Together
Date and Time: 8th July 2007, 12 - 4 p.m. Read the New Jersey invite (PDF) Other events took place in Ohio, Oregan and Florida.
Date: 1st July 2007
Read more and view images at the Myotubular Trust website.
The Cumpana Fun Run Date: 1st July 2007 ![]() Read more and view images at the Myotubular Trust website. Date: 22nd - 24th June 2007
World's Longest Bunting Line displayed in 'The Park' at Glastonbury Music Festival.
Muscle Interest Group Meeting Date and Time:14 May 2007, 10.30 a.m. - 4 p.m. Venue: Birmingham Heartlands Hospital Education Centre. Topic: Updates on the Myotubular Myopathies.
Teleconference
Date and Time: 22 April 2007, 4.00 p.m. - 5.00 p.m. Speaker: Lou Sapporrito, Respiratory Therapist. Topic: The cough assist machine for use in patients with neuromuscular disease.
Family Event Date and Time: Friday, 6 April 2007, 9.30 - 11.00 a.m. Venue: The Boston Harbour Hotel, 70 Rowes Wharf, Boston, MA.
Family event including a short presentation by Dr Patrick Foye on Centronuclear / Myotubular Myopathy and a discussion on current research by Dr Alan Beggs. View the Presentation of Dr Patrick Foye (PowerPoint 4.73 mb).
Date: and Time: 5 April 2007, 6 p.m. Venue: The Boston Harbour Hotel Joshua Frase Foundation Muscle Dream Team hosted, NFL stars and legends, musical celebrities and business leaders, for a night of music, dancing, cocktails, hors d’oeuvres and a live and silent auction.
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