The Information Point for Centronuclear and Myotubular Myopathy

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Newsletters

The Information Point produces an e-newsletter 3 times a year, back copies of these can be found below. If you would like to submit some news for inclusion in a future issue or if you would like to be added to our mailing list to receive these, please contact us at the email address below.

 

Member of the National Council for Voluntary Organisations Member of the Genetic Interest Group Community Champions Fund RecipientUnLtd Millenium Awards Scheme Recipient

Myotubular TrustMuscular Dystrophy Campaign Joshua Frase Foundation Harvard Congenital Myopathy Research Programme

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