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Share a Story The stories featured on this area of the the website have been generously provided by people living with Centronuclear and Myotubular Myopathy. Sharing stories at the Information Point not only gives much needed information but at times, gives hope to those that may have lost it, so we are grateful to everyone who has allowed their story to appear here or allowed us to link to their website. If you would like to share your experience, please contact us, using the link at the bottom of this page. There are currently known to be 3 forms of Centronuclear and Myotubular Myopathy - these are listed below and stories have been categorised accordingly. Coming to terms with a diagnosis can be a difficult and emotional time, both for those with the diagnosis and those who love them - visitors to this website may find the Muscular Dystrophy publication, Everybodys Different, Nobodys Perfect and the Listen to Our Stories website of some help.
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