13 June 2008

• Updated Zak's Accomplishment page; added a photograph and the story My Adventure with Dracula

10 June 2008

• Added 'The Rose' by Jennifer Darr

7 June 2008

• Added The Information Point on Facebook to the Talk pages

2 June 2008

• Added June 2008 newsletter
• Updated the Patient Registry page

23 May 2008

• Added Cruise for a Cure to the Diary Dates page

19 May 2008

• Added link to Chester Chronicle article 'Rachel's Run to Fight Family's Rare Disease'

18 May 2008

• Updated Chester Half Marathon entry and added photos of the event to the Diary Dates page
• Updated Our History page

17 May 2008

• Added Elijah to the In Memory page

16 May 2008

• Updated information about the Thames Walk on the Diary Dates page
• Added Elijah and Benjamin to the Share a Story pages

29 April 2008

• Added the medical article AAV-mediated intramuscular delivery of myotubularin corrects the myotubular myopathy phenotype in targeted murine muscle and suggests a function in plasma membrane homeostasis. Journal: Human molecular genetics, 2008 Apr 22; [Epub ahead of print]. (PDF 4.52 mb)

23 April 2008

• Added Anthony to the In Memory page

22 April 2008

• Added April 2008 Newsletter

19 April 2008

• Updated the About the Condition page

14 April 2008

• Added Kaden to the In Memory page
• Added link to Wallace and Gromit Children's Foundation

29 March 2008

• Added link to the Everyday People Design Project

22 March 2008

• Added An Introduction to Myopathies to the home page

18 March 2008

• Added Remap to Equipment and Suppliers pages
• Added Turn2Us to Disability Advice page

15 March 2008

• Added link to MERU to Equipment and Suppliers pages

14 March 2008

• Added link to Demand to Equipment and Suppliers pages

8 March 2008

• Added Daniel to the In Memory page

1 March 2008

• Added Chester Half Marathon to the Diary Dates page

29 February 2008

• Added the 20 Mile Thames Walk to the Diary Dates page
• Added link to Muscular Dystrophy Campaign Translational Research Conference to the Diary Dates page

24 February 2008

• Updated the acknowledgements page
• Added Beggs Laboratory Newsletter 2007

15 February 2008

• Updated Christopher's story

12 February 2008

• Added Christopher's story

10 February 2008

• Added Reid's story
• Added British London 10k to the Diary Dates page

3 February 2008

• Added Sara's story

1 February 2008

• Updated Jonah's story

27 January 2008

• Added link to Rare Diseases Day (Europe) website

26 January 2008

• Added Joshua Frase Foundation Muscle Dream Team Gala to the Diary Dates page

21 January 2008

• Added link to The National Council for Palliative Care
• Added information about the Inaugural International Neuromuscular Conference to the Diary Dates page

16 January 2008

• Added the poem 'Venus' by Jennifer Darr
• Updated Jonah's story

12 January 2008

• Added Jonah's story
• Added the poem 'I Want Flowers' by Jennifer Darr
• Updated Toni and Mike's story
• Added link to Dogs for the Disabled

11 January 2008

• Added information about the Respiratory Care in Centronucular / Myotubular Myopathy Teleconference to the Diary Dates page

What's New 2007