31 December 2008

• Added Girls Shopping Party Night to the Diary Dates page

30 December 2008

• Updated the home page with links to the Information Point Group page and Cause page on Facebook
• Added link to 'Inheritance and the Muscular Dystrophies' to the About and Share a Story pages

13 December 2008

• Updated the Latest News page
• Added Rare Diseases Day to the Diary Dates page

6 December 2008

• Updated the Diary Dates page.
• Added The Greetings Card Company to Our Friends

5 December 2008

• Added Marlon to the In Memory page

2 December 2008

• Added Kaleb to the In Memory page

30 November 2008

• Updated the diary dates page.

29 November 2008

• Added Winter 2008 newsletter
• Created an accomplishments page for Georgina
• Updated the Latest News page

25 November 2008

• Added photo of Adam at MDA camp to Adam's story.

14 November 2008

• Updated the Latest News page

10 November 2008

• Added link to Diane Abram - Quilter to Our Friends

8 November 2008

• Added The Phantom Tea Party to the Diary Dates page

5 November 2008

• Updated the Latest News page

24 October 2008

• Updated the Latest News page

19 October 2008

• Created Latest News page

17 September 2008

• Added Luke's story to the Share a Story pages

4 September 2008

• Created 2009 Diary Dates page
• Added CNM/MTM Family Conference to the 2009 Diary Dates page

31 August 2008

• Updated the diary dates page with Rob and Jon's Mongolian rally photographs

25 August 2008

• Added August 2008 newsletter

2 August 2008

• Updated the genetic testing page and added link to Orpha.net

1 August 2008

• Updated the genetic testing page with news that clinical testing for the DNM2 gene is now available at the University of Chicago.
• Added Advance notice: First Myotubular Trust call for projects to the Research News page
• Added link to Muscular Dystrophy Campaign Research page
• Added Out and About (wheelchairs as part of a whole systems approach to independence) to the Out and About page

26 July 2008

• Added link to the Directory of Wheelchair Services (UK) to the Equipment and Suppliers page
• Added Access to Air Travel for Disabled People: Code of Practice to the Out and About pages

25 July 2008

• Added Muscular Dystrophy Campaign events; National Conference, Scottish Conference and Muscle Week to the Diary Dates page
• Added link to NetMums

13 June 2008

• Updated Zak's Accomplishment page; added a photograph and the story My Adventure with Dracula

10 June 2008

• Added 'The Rose' by Jennifer Darr

7 June 2008

• Added The Information Point on Facebook to the Talk pages

2 June 2008

• Added June 2008 newsletter
• Updated the Patient Registry page

23 May 2008

• Added Cruise for a Cure to the Diary Dates page

19 May 2008

• Added link to Chester Chronicle article 'Rachel's Run to Fight Family's Rare Disease'

18 May 2008

• Updated Chester Half Marathon entry and added photos of the event to the Diary Dates page
• Updated Our History page

17 May 2008

• Added Elijah to the In Memory page

16 May 2008

• Updated information about the Thames Walk on the Diary Dates page
• Added Elijah and Benjamin to the Share a Story pages

29 April 2008

• Added the medical article AAV-mediated intramuscular delivery of myotubularin corrects the myotubular myopathy phenotype in targeted murine muscle and suggests a function in plasma membrane homeostasis. Journal: Human molecular genetics, 2008 Apr 22; [Epub ahead of print]. (PDF 4.52 mb)

23 April 2008

• Added Anthony to the In Memory page

22 April 2008

• Added April 2008 Newsletter

19 April 2008

• Updated the About the Condition page

14 April 2008

• Added Kaden to the In Memory page
• Added link to Wallace and Gromit Children's Foundation

29 March 2008

• Added link to the Everyday People Design Project

22 March 2008

• Added An Introduction to Myopathies to the home page

18 March 2008

• Added Remap to Equipment and Suppliers pages
• Added Turn2Us to Disability Advice page

15 March 2008

• Added link to MERU to Equipment and Suppliers pages

14 March 2008

• Added link to Demand to Equipment and Suppliers pages

8 March 2008

• Added Daniel to the In Memory page

1 March 2008

• Added Chester Half Marathon to the Diary Dates page

29 February 2008

• Added the 20 Mile Thames Walk to the Diary Dates page
• Added link to Muscular Dystrophy Campaign Translational Research Conference to the Diary Dates page

24 February 2008

• Updated the acknowledgements page
• Added Beggs Laboratory Newsletter 2007

15 February 2008

• Updated Christopher's story

12 February 2008

• Added Christopher's story

10 February 2008

• Added Reid's story
• Added British London 10k to the Diary Dates page

3 February 2008

• Added Sara's story

1 February 2008

• Updated Jonah's story

27 January 2008

• Added link to Rare Diseases Day (Europe) website

26 January 2008

• Added Joshua Frase Foundation Muscle Dream Team Gala to the Diary Dates page

21 January 2008

• Added link to The National Council for Palliative Care
• Added information about the Inaugural International Neuromuscular Conference to the Diary Dates page

16 January 2008

• Added the poem 'Venus' by Jennifer Darr
• Updated Jonah's story

12 January 2008

• Added Jonah's story
• Added the poem 'I Want Flowers' by Jennifer Darr
• Updated Toni and Mike's story
• Added link to Dogs for the Disabled

11 January 2008

• Added information about the Respiratory Care in Centronucular / Myotubular Myopathy Teleconference to the Diary Dates page