HomeOur HistoryNewslettersShare a StoryFrequently Asked QuestionsPatient RegistryResearchDiary Dates


What's New
Talk:  Chat Rooms and Message Boards
Resources
Accomplishments
In Memory
Shop Online and Help Raise Funds for Research
Our Friends
Make a Donation

 


What's New

20 December 2009

11 December 2009

3 December 2009

2 December 2009

Sunflower

26 November 2009

19 November 2009

16 November 2009

14 November 2009

10 November 2009

6 November 2009

Sunflower

20 October 2009

15 October 2009

11 October 2009

10 October 2009

Sunflower

15 September 2009

Sunflower

23 August 2009

22 August 2009

21 August 2009

10 August 2009

8 August 2009

Added A tea-riffic idea for an exhibition at Tidal Wave Gallery to the Latest News page

Sunflower

30 July 2009

28 July 2009

27 July 2009

24 July 2009

16 July 2009

15 July 2009

10 July 2009

  • Updated information about the MTM / CNM family conference on to include a link to the live webcast website

9 July 2009

1 July 2009

Sunflower

16 June 2009

9 June 2009

3 June 2009

Sunflower

25 May 2009

3 May 2009

Sunflower

22 April 2009

  • Added the Manchester 20 Mile Walk to the Events page

20 April 2009

7 April 2009

Sunflower

28 March 2009

24 March 2009

17 March 2009

11 March 2009

9 March 2009

8 March 2009

4 March 2009

2 March 2009

Sunflower

24 February 2009

  • Added Teleconference for parents and family members who have lost a loved one to MTM / CNM to the Diary Dates page

13 February 2009

  • Added the London 10k and Thames Walk to the Diary Dates page

1 February 2009

Sunflower

15 January 2009

14 January 2009

12 January 2009

5 January 2009

2008 | 2007

Member of the National Council for Voluntary Organisations Member of the Genetic Interest Group Community Champions Fund Recipient UnLtd Millenium Awards Scheme Recipient

Myotubular TrustMuscular Dystrophy Campaign Joshua Frase Foundation Harvard Congenital Myopathy Research Programme

Contact a Family

Web Design by Toni

Translate This Page Guestbook Guestmap Disclaimer Contact Us