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Zak with dad Simon, sister Sophie and mum Wendy.Accomplishments: Zak

Zak lives in the UK with his mum Wendy, dad Simon and sister Sophie - he has X-Linked Myotubular Myopathy.

 




Read more about Zak on our Share a Story pages

Accomplishments Home

Member of the National Council for Voluntary Organisations Member of the Genetic Interest Group Community Champions Fund Recipient UnLtd Millenium Awards Scheme Recipient

Myotubular TrustMuscular Dystrophy Campaign Joshua Frase Foundation Harvard Congenital Myopathy Research Programme

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